One week left and all I have left to do is…

…get Ezdenia leveled to 85 and have her professions at max.  She has 4 levels til 85.  Her Tailoring is finally up to Embersilk thanks to all the cloth Calizari sent during her leveling and grinding of Heroics.  Other than that, I think that is all I have left to do.  Oh and get them both their Epic flying speeds.  Not sure if I will wait until after Mists for that or if I will do it this week or not.  If I remember right, we won’t be able to fly in the new zones anyway…so it isn’t like  I will be missing out.

Which reminds me, I hate leveling Tailoring through Frostweave!  It takes forever!  I swear I could hear her grumbling under her breath.  She just needs to get maxxed asap so she can make the Illusionary Bags and she and Calizari will be happy for a little while.

Calizari has been doing her JC and Cooking dailies, with a Fishing daily thrown in there every so often.  So she finally hit Revered with her guild.  Woot!  She really needs to hit the random grind again for a few days tho.   The extra gold, cloth and disenchantables that she can send to Ezdenia will come in handy.  She won’t be doing it for nothing….she is expecting to get some nice big bags out of it!

I have been reading as much as I can on the WoW forums…US and EU, because there is so much good info on both.  And, because I  never go by just one opinion.  I formed my own opinion early on but have waited to see what the well known Resto Shaman bloggers theorycrafting came up with.  I was relieved to see that I was on the right path.  Now to wait and see if any numbers change when Mists goes live.

I changed my UI back to ElvUI…and ended up muting the Bugsack addon…hearing ‘Fatality’ every 5 seconds had me wanting to toss the whole mess and start over!  Muting is a good thing.  😉

After doing two of the Theramore Scenario’s…I am not impressed.   And definitely not impressed that it is just one more grind that I would have to do for a piece of gear I need/want.  Then I tortured myself even more and ran one last LFR and got NADA again…200 gold…not worth the time really.  I can make more in less time elsewhere.  And this time I even tried to stay in the middle of the healing meters in hopes that being lower would help me get something…even one little piece, but no such luck.

Only thing I saw today…

I hope the next LFR I do is better than this…maybe I need some Feng Shui going on in-game or something.  Either way, new content is looking better and better every day.

I am still working on the Mysterious Eggs from the Oracles…Tickbird Hatchlings are piling up in my bank.  I did get the Proto Drake Whelp today, so at least I got something out of the day.  I started Ezdenia on the rep grind as well…she is half way through Honored and will start her grind of Mysterious Eggs this week.  With two working on it I will have a better chance right?   Well, if one of them were to get it, it would probably be Ezdenia anway…she has much better luck when it comes to rolls and gears drops, and just about everything else.

And soemthing I have been thinking about doing…Twitter. Not the tweeting so much as the following of others. So maybe it’s time I get a Twitter account and start following Wow news that way.  I know, I am late on the technology thing, but better late than never right?  Its just that I have a couple people I would like to follow better going into Mists.  Which means I won’t go to sleep tonight until I get that all figured out.  I better get on it now,  I have an MRI first thing in the morning to do.  If I put it off until before I leave for that, I won’t get it done.

Advertisements

New Rheumy doc and todays visit…

Today is the fourth day of being sore in every joint and the third day of not being able to play WoW.  It was my first visit to the new rheumatologist tho and was a little surprised what he had to tell me.

After a 3 hour day at the doctors office, doing background history and him looking at blood test results from earlier this year and poking and proding me and questions upon questions and more questions…he is retesting me for a few things and will be doing a couple MRIs in 3 weeks before starting me on any meds.  Mostly because he thinks my pain is not from Fibromyalgia alone…he thinks I have early onset Rheumatoid Arthritis.

So what could be worse than Fibro?  Any one of the autoimmune diseases…sigh.  After spitting that out, he asks me if there is any history of arthritis in my family….um, yes my mother had rheumatoid arthritis…bad enough her docs wanted her to have back surgery and fuse her spine together…to which she told them exactly where they could go.  This was 10 years or so ago tho.

So, now I am in the waiting mode again to see if this new doctor can figure out what the heck is going on with me.  Telling me I am a mess does not count as a diagnosis of anything.  And yes, those were his exact words…I am a physical mess.  Ya think?  He says I am fixable to an extent;  since there are no cures for either Fibromyalgia or Rheumatoid Arthritis.  Time will tell.

He asked me what hobbies I have.  I said I play WoW when I am able and read one of the many Terry Brooks Shannara series books when I can’t play.  He didn’t have much to say to that.   😉

On a sillier note…can you see an Orc shaman gimping along in the very back of the group, grunting and throwing out heals as she went?  That would be me lately.  At least my toons are racking up some rested time…hopefully I will get some rested time too.  I could use the boost.

The Fibro days of summer

I have had a couple rough days and have not been able to sit at my computer much less work on leveling my Shaman or Priest.  Instead, as I lay on my bed yesterday, waiting for the 1/2 Oxycodone to kick in (left over from when hubby had dental work done), I decided to try to write out something (anything) by hand.  I was just so incredibly sore and to the point where I finally gave up and was ready to try anything that would stop or at least make the pain more manageable. The Tramadol has done diddly to help with any of the pain.  So I gave up and took the good stuff.

You see, Saturday I wasn’t feeling so good but not really bad and I thought maybe a little indoor gardening was in order to chase away the blahs.   I managed to re-pot 4 smaller plants and then had my youngest help me with my biggest one.  I didn’t think it was all that much effort or that I was over doing it. It wasn’t like I was trying to hurry or anything.

Anyway, here is what I managed to write while lying in bed Sunday, please pardon my language:

Days like today really piss me off. I didn’t feel so great yesterday and it was enough to send me into one of those ‘get something done’ days. More or less, I tried to stay busy so I didn’t have time to think about how crappy I was feeling.

I didn’t go crazy or at least I didn’t think I had.  But today, I can barely write or tolerate my 15 year old.  And all it took was to repot a few plants.  That’s it, nothing major.  The biggest one my son helped me with, so it wasn’t like I did more than I could handle. But geez…really?  Repotting four plants total kicked up my Fibro enough that it’s literally kicking my ass today?  For real?  This is BS!

I stopped taking the Amytriptyline almost 2 weeks ago.  I do not like how it made me feel.  The only good thing I found that it could do was quiet my brain down  and kept it from running at 100mph or faster the minute I crawled into bed.  Other than that, it made me sleepy longer into the following day and I ended up sleeping longer than I normally would.  I also found that it made me a bit paranoid as well.  Not nutty paranoid but stupid shit that I knew better than to ever think in the first place. And the weird as hell dreams?  Ugh.

I am not depressed…I am pissed off!!  Pain makes me a cranky granny.  The worse the pain, the better chance somebody will be offended or told to go away.  Today is one of those days.  Which is why I gave in and took the Oxy and am waiting for it to kick in.

I have problems getting to sleep and staying asleep.  My husband explains it best I guess when he says that If a mice could fart I would hear it in my sleep and be instantly wide awake and looking for the little bugger.  That is no joke.  Whatever causes it, I have no clue.  All I know is, that I can go from dead on my feet to wide-the-hell-awake in an instant from anything that gets past the white noise of my fan(s).  Snoring from either my hubby or my son (from the next room no less!), passing thunderstorm(s), noisy neighbors, or even the ringing in my ears.

I just keep telling myself its only two more days…two more days.

In the mean time hubby has the other half of that Oxy ready for me for later when I am ready to go to bed. Anything to get me through til my appointment on Tuesday.  I can’t do this much longer, I need some kind of help to sleep and for the pain and burning that drives me up the wall because once it starts it will not stop for days.

So no playing WoW for me today.  I think I was lucky I managed to stay logged in on Calizari yesterday for 30-45 min. before I gave up and shut it down.  But I did manage to read quite a few great blogs later on throughout that day.  So it wasn’t totally boring for me…I just have to do a little at a time when I am like this.  Maybe that was too much too, I don’t know.  At this point I admit I have no clue why or what is causing the flares to be so regular and to last for so long.

I just hate this.  I have a few days here and there, where I feel good enough that I start thinking I might be able to work again.  Then, I get a rude awakening after days like yesterday and today.  Fibromyalgia is a bitch…and I stick by the idea that if Fibro were a person, they would be long dead.  Somebody would have lost sense of all that they are and would have done Fibro in for sure.  Hell, I would have made it the quickest and cheapest cure in the world….one shot, one kill.  No more pain…for any of us.

Today is looking like it will be a repeat of yesterday…I am sore and the burning is back.  I probably am over doing it now just by typing this out.  Grrr!

I hope tomorrow is better.  I am not missing my appointment for anything…even if hubby takes the day off to get me there.

New Rheumatologist finally…

But I have to wait until July 17th for my appointment.  At least this doctor looks like he has quite a bit of experience since he specializes in Fibromyalgia.  All I have to do is make it to that day….and right now it may as well be a year away, the way I am feeling.

Out of the last 4 nights, I have had insomnia for 3 of them.  The meds from the original rheumy they sent me to are doing NOTHING to help me sleep or for the pain.  So far I think the only good thing is that my iron level seems to be improving.  Which means that the anemia isn’t fighting the insomnia anymore….not sure which one I would rather have right now.

So from here on until I can see the new doc, no caffiene for me.  Before it was all that would help keep me awake.  Now it helps the insomnia and keeps me up until 2-3am.

I can’t play WoW, I can barely hold up a book to read and typing takes forever. So it looks like today is one of those days I rest and relax as much as humanly possible.

Think I will try bumping up my Tramadol by 50mg for a day or so and see if that helps.  I have to do something, this is no way to live.  Maybe some music to help me relax…

Getting through the more crappy fibro days…

I woke up this morning to one of those days.  I felt like I worked all night!  Sore elbows that hurt like hell, shoulders just as bad, hips sore like I rode a horse (or something less comfortable) all night long in my sleep.  Even the bottoms of my feet are sore, the strangest of all…my armpits hurt!  Now how weird is that!?

But, I want and plan to work on the Orc Resto Shaman that is currently lvl 45 and patiently waiting for me to get back on and get back to work on her.  So far she is fun but I haven’t done any PvP on her, so no decisions yet.  I still have quite a few more toons to create and level up a bit before I can make a definite decision on which will be my favorite.

Thank goodness on better days (and not-so-good days too) I come up with ideas for this blog.  So when I am up to it, I either type out a whole post or begin one and then save it for later for the really, crappy days.  On the ‘OMG I hate this shit’ days, when I can’t do anything except crawl back into bed and sleep for 12-16 hours until I feel good enough to try again…nothing gets done but hours and hours of sleep.

So far today isn’t looking like a sleep day, just another painful day…..so I pop the top off a bottle of Coke and imbibe in the caffeine and sugar rush and set off to see what I can accomplish today.

World of Warcraft with Fibromyalgia

My life has changed since Fibromyalgia. Some refer to it as Fibromyalgia Syndrome (aka FMS), but most of us just call it Fibro.  It changes everyone who has it, but each in a different way.  Being told there is no cure is disheartening.

One of the few hobbies I have left is World of Warcraft.  I also like reading good books when my vision isn’t a blurry mess.

Okay, so things changed.  The burning in my shoulders will not be going away and pushing past the burning pain is NOT an option.  With or without pain meds, the burning is there if I over do something…anything.  Cleaning the livingroom carpet took me 3 hours earlier this week…and is still kicking my butt today, two days later.  So I haven’t played much at all.  But once I have a pretty good day, look out!  As long as I can keep myself from playing too long I should be okay.  Sometimes I can play for 2 hours and be okay, other times I can play for 30 minutes and have pain in my shoulders which can make my whole body tense up…which means I have to stop for a while, sometimes for a couple days.

I can say it, I hate this crap!  Before I was diagnosed with Fibromyalgia, I had never even heard of it.  The symptoms are similar to MS, any or many of the 80 forms of lupus, thyroid problems and various types of arthritis and/or a combination thereof.  Although many with Fibromyalgia may already have some form of other chronic illness, those who don’t very well could later on.  Fibromyalgia seems to open the door just enough for other chronic ailments to squeeze in.  It definitely wears a person out.  Being sore and often times fatigued for no reason tends to limit what folks with Fibromyalgia do.  The best way for me to put it so everyone understands is this:  After Fibromyalgia you are not the same person you were before the Fibromyalgia.  It affects your whole life in ways you hadn’t thought of.

Worst of all, there is no blood test that will diagnose it.  So many have been told for years that its all in their heads.  Recent research has shown that it is literally in our heads, but not like some would like to think. Even Dr. Oz had a short portion of his show back in March where he talked a little about Fibromyalgia and had a human brain that had been cut in half to show how the brain is either affected by Fibromyalgia or how Fibromyalgia occurs from changes in our brain.  More needs to be done to determine what came first, and there will be many sighs of relief once they get a better understanding of FMS.

Things I was noticing in my WoW play time months before I was diagnosed:

#1- Brain fog…I was having a hard time concentrating in Raids and was easily distracted. I still have issues with being easily distracted, and its annoying!

#2- Irritability…I found myself turning the volume down on my headset or just taking my headset off for quieter game play.  It just seemed too loud for some reason. Even now I tend to play without sound unless I need to be in Vent for something.

#3- Misspelling and forgetting what I wanted to say in guild chat.  Or even worse, messaging the wrong person.  Even speaking was hard at times…I would forget a word I wanted to say or would use the wrong word…making talking in ventrilo or mumble stressful.  Stress…another way to make Fibro rear its ugly head.

#4- Fatigue and Pain…Slower reaction time when healing a Raid or even 5 man’s.  It really irritated the heck out of me. Most of the time I thought it was because I was just too tired from work.  But I felt the same way every day…even after coming home and falling asleep on the couch and being so sore in places where I shouldn’t have been sore.

#5- Lack of Motivation…I just wasn’t having fun anymore.  Not playing at my best really sucked and I felt like I may have to give up playing anymore.  Then I came across this thread in the WoW forums: http://us.battle.net/wow/en/forum/topic/4038615902?page=1    So after reading all 43 pages of that, I decided that if people with worse/more health issues than myself kept trying and kept playing, then I damn well could find a way to play too!

So this past week I have been using the time when I’m too sore to play, to try to figure out how I can make the game fun for myself again.  So, I started reading posts in the New Player Help section of Gameplay and Guides forums.  People who asked how other players choose a race, faction, and how people go about picking a ‘Main’ toon. Choosing a role is easy enough…I want to stay a healer. It’s what I have had the most fun doing in WoW. Faction…got to be Horde!

Essentially, I have decided to start over and figure out what race and class I find the funnest to play.

So Fibro can kick back and watch me play…

HealzwithFibro

My World of Warcraft set up

I love the fact that even older computers can run World of Warcraft, or I would be SoL.

Since my son lent me the use of his extra monitor, I have learned that it would be very hard to go back to a single monitor.  That is, unless I had a huge monitor capable of playing WoW and showing a full browser page unobstructed.  Ya, like that will ever happen!

For now I use two 22″ widescreen monitors.  The difference in colors is no big deal…usually WoW is on the left monitor with a browser open in the right monitor.  If you raid, a dual monitor set-up comes in very handy.

So here is how my desk looks:

Photobucket
As you can see, I have everything I need….a large cup for a drink, my Thermaltake Saphira gaming mouse (new from my husband), my Steelseries Stealth keyboard, hand-me down 5 year old Turtle Beach headset/mic, desk lamp for when I need to take notes or jot down a reminder for something and my pill-box along with the large bottle of Excedrin Migraine pills ready just in case.

I like the Steelseries Stealth because of the ergonomic left side with its programmable keys.  It makes for an easier reach for me compared to the standard keyboard.  There are times I have a hard enough time typing much less playing a game.

My Tower is underneath where it should run cooler.  And since we don’t have air conditioning it is probably the best place for it.  If it gets as hot as last summer, then it may end up with its very own fan for extra cooling.  I am hoping that won’t be necessary. My Tower is also a hand-me-down from my husband.  It’s an Intel Quad Core Q6700 with 8Gb of memory running on Windows 7 Home Premium 64 bit.  I am using an ATI Radeon HD 5670 1Gb video card.  I prefer AMD processors, but whatever works, right?  It’s not the fastest or prettiest but it works for me.  Plus the graphics are much better than with the old Dual Core I was using, which my youngest son got handed down to him.

So that is what I play on….I wonder what others play on?

Healzwithfibro